Mijas celebrated Global ALS (amyotrophic lateral sclerosis) Day last Saturday with a parade, a puff pastry ribbon measuring no less than 140 metres, dancing and craft stalls in the square on La Cala Boulevard. The BenalELA association, in collaboration with the Mijas Town Hall, organised the event with the aim of supporting research and raising visibility for the disease. “For now, our hope lies in this research, which may somehow lead to a miracle cure for the neurological deterioration caused by the disease”, said the mayoress of Mijas, Ana Mata (PP).
- El acto tuvo lugar a iniciativa de la asociación BenalELA, que pidió celebrar esta jornada en Mijas. |
- Mijas Comunicación.
The event was held at the initiative of the BenalELA association, which requested to host this day in Mijas. The councillor for Social Inclusion, Mari Francis Alarcón (PP), provided the group with everything they needed: “Naturally, the Town Hall is helping with the logistics, all the materials and everything they need to set up the event, as well as the publicity we are giving it”.
The association points out that ALS patients fight for their lives every day and that research is their only way out. The president of BenalELA, Juan Carrasco, was visibly moved: “We want to thank Mijas for helping us raise awareness of ALS because this disease exists and those of us with ALS are fighting for our lives”.
Stay strong
With this disease, your attitude is everything. Jose Miguel Fernández, a former colleague at Mijas Comunicación and an ALS patient, offered patients this advice: “You can carry on with ALS, you can live with ALS and, above all, you must try to think positively; if we don’t have a positive attitude, then we’ll sink, adding depression to the mix, and that would mean dealing with two illnesses. So keep your chins up, I’m sure we’ll have that cure we’re waiting for very soon".
The afternoon was sweetened by a gigantic 140-metre-long pastry, from which over 600 portions were served. José Miguel Guzmán, a pastry chef and volunteer with the association, shared the recipe: “It’s a puff pastry that we first filled with vanilla cream, then topped with crumbled puff pastry to give it a slightly crunchy texture, sprinkled with green sugar, and finally finished with a pistachio cream”.
A dance performance rounded off the event, with Víctor Rojas’s students taking to the stage to showcase their talent and solidarity. Let’s hope that this incurable disease ceases to be so, and that research will soon provide a cure.
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